Read demi's story
Demi from Louth Lincolnshire was a perfectly happy, healthy and normal 9 year old little girl who, in December 2015, was suddenly diagnosed with a Classic Medullablastoma brain tumour.
She had full surgical removal, followed by radiotherapy and chemotherapy which finished in February 2017 and was having clear 3 monthly scans up until her most recent MRI scan this month (March 2018) which has shown that the tumour has returned in her spine and head. As the standard treatment has failed, all the uk can offer Demi is phase 1 and 2 trials which is more chemo that we’ve been told wil just slow the disease down, we’ve been told this isn’t going to get any better.
Since this news we have frantically been trying to find where promising treatment is available and have found the Burzynski Clinic in Houston Texas to offer us the best hope through using Antineoplaston Therapy, but, this is to come at a cost that on our own is impossible to pay for. I’ve spoken to parents who have a child who was treated at this very clinic after being told their child’s brain cancer was terminal and all hope was lost, this was back in 2008 and this child’s tumour is now resolved! And based on others personal experiences of visiting and being treated at this clinic, that’s why we’ve chosen it.
We have been told that to get us going we need at least £30,000 - £35,000 but that costs will tally up to around at least £150,000 and this is to cover costs of everything that involves getting us out there including the treatment itself, flights, accommodation and follow ups etc.
We have the support of a fully qualified naturopath who is helping and guiding us with intergrated treatment. We have changed Demi’s diet dramatically and she is also having HBOT as often as is possible as our nearest centre is nearly an hour away.
We are desperate for funding and prepared to do and go to whatever lengths we need to, so save our Demi and I as a mother will never give up on my daughter, she will not be taken from me and so I’m asking everyone of you for your help and support for this treatment that offers hope for Demi. Every little helps and I thank you in advance for your support in helping us to get to where we need to be.
If we should be so lucky to reach our goal and/or there is any money left over that we don’t personally need to use in helping demi get better through what we are already doing then we would like to use it to help and support other families who may one day be in the same position that I am in right now! I feel it’s only right that the money we raise goes towards what it is intended for, to help save a life!
Update - Dr Burzynski has reviewed all of Demi’s medical records and has said he can treat her! As soon as we have enough funding we can go to Texas! Please help us to get my daughter there, the sooner the better ♥️
We also have a Facebook group, please join and add people to it, the more support we have the better!
Thank you for reading our story and we hope you can help us!
Here at the Beck we are trying to help raise funds to help with Demi's treatment.
We are holding a Coffee & Cake morning on Friday 11th May 2018 from 9.30am until 11.30am.
There will be a Raffle draw, Tombola, Table Top sale and of course coffee & Cake!
Please support this cause by joining us on the morning, if you would like to offer further help we are asking for cake donations which can be bought in on Thursday the 10th May or on the morning of the fundraising event.
If you can offer any Raffle or Tombola prizes please call in or telephone 01507 472999 asking for Debi, Kirsty or Ashlie.
We thank you in advance
It's amazing what can be achieved when we all work together